GIVE CAYDEN BETTER DAYS
Amy knows the heartache of having to tell her seven-year-old son Cayden no, over and over again. No, your lungs can’t handle a soccer game today; no, that school field trip isn’t a good idea; no, karate lessons aren’t in the cards.
Those missed moments come less frequently since Cayden started taking a new medication, Kalydeco. Covered by their provincial health plan, the drug reduces some of the more serious complications of cystic fibrosis, meaning less heartache for Amy and more chances for Cayden to join his team on the field.
Hundreds of other Canadians living with cystic fibrosis aren’t as lucky. Their doctors have prescribed a powerful new medication that could give them better moments with their loved ones, but without provincial coverage, many are unable to actually get the drug.
It’s a challenge many living with chronic and rare diseases know.
Getting this drug means almost half of Canadians with cystic fibrosis will live their lives doing more of what matters most. Be a part of giving them the moments that matter. Sign the petition.
As progress is made in research, and new, innovative drugs become available, gaining access to them for those who truly need it shouldn’t be a problem. If someone is prescribed a drug that can drastically improve their quality of life, they should be able to get it.
Approved for use by Health Canada in 2016, drug trials show Orkambi significantly improves lung function, reduces the number of lung flare-ups and improves the nutritional status of people who have two copies of the most common mutation of cystic fibrosis.
Despite support for the drug by the directors of all of Canada’s accredited cystic fibrosis clinics, the Canadian Drug Expert Committee (CDEC) has recommended Orkambi not be covered by provincial health plans. British Columbia has already accepted this decision and we expect other provinces to follow suit. It’s a decision that effectively denies people access to a medication that could improve their lives, and the precedent it sets for accessing new drugs in the future is dangerous.
Stand with families like Cayden's so people living with Cystic Fibrosis can access the medicines they have been prescribed.
WE NEED YOU NOW!
Sign our petition, share your voice, speak out. As Canadians, we pride ourselves on a public healthcare system that takes care of everyone. But right now, that system is leaving hundreds of people without the care they need, denying them access to a medication that may improve and could potentially extend their lives. This is a drug that can give people living with cystic fibrosis better days with the ones they care about.
WHAT DO WE DO?
Over 50 years Cystic Fibrosis Canada (CFC) has invested more than $235-million in research and clinical care focused on improving the lives of Canadians living with cystic fibrosis and searching for a cure for the debilitating disease. Most recently, our advocacy and lobbying work resulted in newborn screening for cystic fibrosis in almost every province. Our efforts continue to help ensure Canadians living with cystic fibrosis have affordable access to powerful new medications that improve their lives. Medications like Kalydeco, a drug only recently approved for coverage due in part to the advocacy work of CFC and our supporters. It’s helping dozens of Canadians with a specific mutation of cystic fibrosis manage the symptoms of the disease and enjoy life to the fullest.
Join us. We need the entire cystic fibrosis community to come together for this fight.
Your voice will allow those who could benefit from this drug to focus on what matters most: hearing cheers from their loved ones as they join their team on the soccer field.